Wednesday, 31 May 2017

Join me on The IBD & Ostomy Show, Thursday 8th of June

Exciting news! I will be on the IBD & Ostomy Support Show on Thursday 8th of June, talking all things IBD, ostomy, and of course #IBDSuperHeroes.

The show goes out LIVE on YouTube and Facebook on Thursday each week between 8 and 9pm, so let's hope they've got their bleeper ready! Essentially, it's a chat that YOU get to watch and interact with via a live chat tab on YouTube. If you would like to tune in to this week's show, visit the event page, click 'going' and then return by 8pm on Thursday and click the link in the event. Simples!

The topic will be 'other health issues related to IBD'. Ahead of the show, a poll is published for you to HAVE YOUR SAY on the topics being discussed, so if you'd like to do that, click here.

I was asked to do a quick introduction to me, so here it is...

Mine was not your typical story of being sick for a long time and having to fight for a diagnosis. For me, it all happened very quickly.

Excruciating pain, blood and diarrhoea came out of nowhere and saw me in bed, unable to move for two weeks. I slept and I went to the toilet and that was it. In those 2 weeks I lost 11lb. I went to A&E and was admitted and diagnosed on the same day. 

I have been fundraising for Crohn’s & Colitis charities and raising awareness of Inflammatory Bowel Disease for over 3 years, which led to a Pride of Britain Award in 2015. 

The current project that I run with follow J-poucher, Corinne Burns is #IBDSuperHeroes, focusing predominantly on finding a cure for IBD. 100% of donations are invested in to research via Cure Crohn’s & Colitis

You can find out all about #IBDSuperHeroes on the blog. Click around and meet the team, read other peoples stories, buy merchandise, see our mentions in the media and what we’ve been up to etc etc.

You can also visit my blog which includes contributions to Huffintgon Post UK and The Mighty. 

Saturday, 27 May 2017

In an indoor location write down three things for each of the following:

Sounds that you can hear;

The fridge, humming as it circulates the cold air to keep my fruit and vegetables crisp. Little does it know its main contents is cheese and pickle.

A dog barks in a garden not so far away. It barks often, never really sounding distresses or excited. Purely like its barking because it likes the sound of its own voice. His people should probably pay him more attention. I say him, because I assume, that only a male dog would want to demand attention in such a way. I know nothing about ‘him’, or his people. I do not know his breed, his colour, or what his favourite toy looks like. Again, I assume, like when you create a picture of a person in your mind whilst you listen to them on the radio, or read them in a book. He silences as I write about him, as though for today, he is happy that someone ‘heard’ his voice, and now he is done.

My Chihuahua is chewing a treat. I am pleased as it’s a fresh breath stick. I am not so pleased that this has to be done quite so loudly as I try to engage my brain in to ‘writing mode’. She opens her mouth to chew once she has ripped a piece off, and when she has swallowed, she licks for a while, as though trying to soften the edge where she has pulled it away before it was ready.

Textures that you can feel;

The woven fabric of the sofa is not that comfortable when you really stop to think about it. It feels dry, too dry almost, like I should be cracking open the E45 and giving it some TLC?

My legs are soft, yet slightly prickly. The hairs breaking through from the last epilation are thin, but when my hand flows over them in the wrong direction, they still have enough about them to make my fingertips tingle. My hand doesn’t go with quite so much ease it reaches the back of my knee where sweat has begun form from my bent leg.

My legs feel my hands run up and down them. The pressure differs from the palm of my hand sweeping gently to an increased pressure as one fingertip searches for the best route to induce the most tingling in it.

Odours that you can smell;

There are lilies in the corner of the room, that only began opening or day or two ago. Half are still yet to open so the scent is not yet overpowering. It drifts passed as the breeze creeps in through the crack in the door that is not intended, purely ‘fucked’.

The sofa is relatively new, and you can still smell the ‘newness’, which if we’re being honest, is not entirely pleasant, like the smell of new clothes that you always wash before wearing, and unlike a book which smells like adventure. Full of hidden secrets you’re yet to uncover.

There’s gammon in the oven, covered in a sticky honey glaze that I can’t wait to eat! I want to smell more of it, but the lilies take precedent in this room. 

Flavours that you can taste;

The aftertaste of coke that I can only assume no one really likes, which leads me to wondering why anyone ever drinks it. It’s flat which is how I like it, because it’s been left in the fridge overnight after a post-cinema McDonald’s trip.

If I concentrate, which I would really rather not, the faint taste of codeine lingers at the back of my throat, reminding me I am sick.

Objects that you can see;

The flowers in the corner smile at me. They know I appreciate them, but I will probably forget to give them fresh water when they need it. They’re the classic pink and white, with the brown and often transferred pollen. They’re very big, because my boyfriend likes to but the best, and they stand out against the wall which is supposedly ‘sand’ coloured. How can you call a colour sand, without specifying said sands location? And not one grain of sand, if inspected under a microscope would be identical to another. A myriad of colours and textures and sizes and shapes, quite disrespectfully – I think, shoved under the umbrella term for a colour, ‘sand’.

The leopard print curtains make me think that they’d probably be much better suited to a brothel. They’re not good quality. I bought them when I was buying everything else which meant my budget had to go a long way. They were cheap, so you can see through them, and often when I am watching the TV, I am distracted by the light outside.

I have a large, colourful, metal and glass gecko crawling up the wall. It’s not the only gecko crawling up the wall in the room but is by far the prettiest. She is supposed be in the garden on a fence, where the pink and green coloured glass in her abdomen catches the light. Her eyes are not glued on, but instead, encased in twisted wire which has been coiled around glass beads. She is beautiful, but has a look of not knowing it.

Friday, 19 May 2017

The importance of a Pizza Party

It’s been a great Friday for me!

Firstly, because it’s World IBD Day, so I’ve had the opportunity to shout about how important raising awareness is. Not only is it acceptable today more than any other day, I would even go as far as to say it is expected - welcomed! Of course, I delivered, with the same flare, style and enthusiasm as always – none, clumsy, but the enthusiasm I got nailed! 

So what is the second reason for my ‘great Friday’, I can hear you pondering. Well, today is also National Pizza Party Day!

If you want to be pedantic about it, which I don’t doubt some of you are, it’s actually an American National day, but I’m more than happy to jump on the bandwagon for most National food holidays!

If you want to see what I have been up to in terms of raising awareness today, head over to Huffington Post and The Mighty. I have been crazily sharing on social media and have spent the last few weeks designing awareness images and creating Thunderclaps etc. For those of you not in the know, Thunderclap is a nifty little site that allows you to create a short post (short enough for Twitter), and ask people to support your message with their own social media profiles, meaning that at a time and date you've specified, the message will go out on their social media. Neat huh?

This evening has been spent with my beloved, making pizzas with ready-made pizza dough (I know – I am ashamed, honest)! He knows it’s best to indulge me when I request things like ‘a pizza making party for two’. Who said romance was dead?

As I said, it’s been a great Friday! I feel like I have not only done well for the IBD community, but also suitably romanced my other half too. Productive wouldn’t you say?!

What do you mean, having him make his own dinner is not romance? YOU KNOW NOTHING!